Dr. Young is a Director of the School of Rural and Northern Health at Laurentian University and holds a Research Chair in Rural and Northern Children's Health. She represents Laurentian University on several national child health councils. In addition to her primary appointment at Laurentian, she holds appointments as a Scientist at the Hospital for Sick Children's Research Institute and Senior Scientist at the Institute for Clinical Evaluative Sciences (ICES). These linkages support her research focus on rural and northern children and youth.
Dr. Nancy Young is working to ensure that the voices of children and youth are heard when it comes to their health. Since health and quality of life are specific to the perspective of the reporter, child-centric methods are of critical importance in the measurement of children's health. Dr. Young's research has proven that children are as good as their parents and clinicians in reporting on the state of their health. Her expertise in cross-cultural adaptation of child health measures is reflected in her collaborative research internationally (e.g., with Beijing Children's Hospital in China). This expertise is being applied in many countries around the world.
For the past decade, Dr. Young's research is increasingly focusing on Indigenous children. She played a critical role in the development of the Aboriginal Children's Health and Well-being Measure (ACHWM) in collaboration with many partners including children and youth. This measure is now known by the name the children have given it: Aaniish Naa Gegii (meaning How are you? in Ojibway). She has worked in collaboration with First Nations, Métis and Inuit groups to adapt this child-self-report tool for different regions and cultural contexts. This work is generating numeric data to augment traditional understandings of Indigenous children's health and is another step towards better health outcomes. See www.ACHWM.ca for more information. A webex presentation of this work is available at: http://lul.ca/u/aUsNfhttp://lul.ca/u/aUsNf
Dr. Young is also a leader within the Laurentian University research community. She was the founding Director of the Research Centre for Evaluating Children's Health Outcomes (ECHO) and primary supervisor to a cadre of Masters and PhD students. Training the next generation of HQP is essential to her mandate. Investing in our children's health is essential to our future. Dr. Young's research bridges from bench to bedside to backyard to improve the lives of our children.
Her publications are available on line:
ORCID ID: 0000-0002-1739-3299
Some of her collaborative research grants are included on these sites.
- BSc PT (Physical Therapy) University of Toronto
- MSc (Clinical Epidemiology) University of Toronto
- PhD (Medical Science) University of Toronto
Scientist, SickKids Research Institute
Senior Scientist, Institute for Clinical Evaluative Sciences
On The Web
Dr. Young's research focuses on children who face unique health challenges due to disability, illness, disadvantage, and limited health-care resources, particularly children in rural and northern regions. Her projects enable children with physical disabilities as well as those in communities distant from tertiary care hospitals to be engaged, and thus enhance the relevance of research to these children. Her research is multi-disciplinary and uses a variety of research methods including health services research, survey research, and qualitative research. Over the past five years, she has been actively engaged in 26 research projects, including special projects focused on rural and northern children's health; methodological foundation projects that are essential prerequisites for her research agenda; provincial and national child health projects in which she has integrated rural and northern children; and capacity building projects unique to rural and northern regions. The goal of her current research is to improve the health of Indigenous children, particularly those in rural and remote communities.
Her research is currently funded through a series of peer-reviewed grants. She is a Principal Investigator on the following grants:
- Listening to Children’s Voices –Promoting Indigenous Mental Wellness [I aM Well] CIHR Pathways 3 Grant [2019-2024]
- Evaluation to Action Integrating the Voices of Aboriginal Children. MOHLTC Health Systems Research Fund [2017 – 2019]
- Aboriginal Child Health and Well-Being Measure Outreach. Ministry of Children, Community and Social Services [2019 – 2020]
- The Aboriginal Youth Mentorship Project in Toronto. Diabetes Action Canada [2017 – 2020]
- Deepening The Roots of Living in a Good Way for Indigenous Children. The Indigenous Youth Mentorship Program. CIHR Pathways to Health Equity Component 3 (Co-PI, NPI Jon McGavock) [2019-2024]
- The Aboriginal Youth Mentorship Project in Toronto. Diabetes Canada (with support from Manulife) [ 2018 – 2020]
- Measuring Quality of Life in Boys with Hemophilia using Longer Acting Factor Replacement Products. Biogen Grant [2017-2020]
- Enhancing Identification and Referral to Treatment for First Nations Children and Youth Experiencing Depression. Cundill Foundation / CAMH [2017 – Dec. 31 2019]
- Comparing the Effectiveness of a New Screening and Triage Process vs Standard Practice in Matching Mental Health Services to Needs among Aboriginal Youth Living On-Reserve. SPOR IMPACT Award [2016 – Dec 31, 2019]
She is a Co-Investigator on the following grants:
- SPOR Evidence Alliance. CIHR [2017 – 2022]
- SPOR Network in Diabetes and its Related Complications. CIHR [2016 - 2021]
- Laurentian Univeristy Research Chair in Rural and Northern Children's Health (2015 to present)
- Canada Research Chair (Tier II) in Rural and Northern Children's Health (2005 to 2015)
- Ontario Ministry of Health Scholarship (1994 to 1996)
Dr. Young is currently the primary supervisor for 1 post-doctoral fellow, 3 doctoral students and 1 masters students in the School of Rural and Northern Health.
Dr. Young's full list of publications is available at on line at https://orcid.org/0000-0002-1739-3299
Her most recent publications are listed below:
Usuba K, Russell J, Ritchie SD, Mishibinijima D, Wabano MJ, Enosse L, Young NL. Evaluating the Outdoor Adventure Leadership Experience (OALE) Program using the Aboriginal Children's Health and Well-being Measure (ACHWM©). Journal of Outdoor and Environmental Education. 2019:, pp.1-11. DOI: 10.1007/s42322-019-00038-2.
Wabano MJ, McGregor LF, Beaudin R, Jacko D, McGregor LE, Kristensen-Didur S, Mishibinijima D, Usuba K, Young NL. Health Profiles of First Nations Children Living On-Reserve in Northern Ontario. CMAJ Open May 14 2019;7(2): E316-E322. DOI 10.9778/cmajo.20180128.
Usuba K, Price VE, Blanchette VS, Altisent C, Abad A, Buchner-Daly L, Carneiro J, Feldman B, Fischer K, Grainger J, Holzhauer S, Luke B, Meunier S, Ozelo M, Tang L, Vallin S, Villaça P, Wakefield C, Warfe G, Wu R, Young NL. Impact of Prophylaxis on Health-Related Quality of Life of Boys with Hemophilia: an analysis of pooled data from 9 CountriesImpact of Prophylaxis on Health-Related Quality of Life (HRQoL) of Boys with Hemophilia: an analysis of pooled data from 9 Countries. Research and Practice in Thrombosis and Haemostasis 2019; 00:1-8. DOI: https://doi.org/10.1002/rth2.12202.
McGregor L, Maar M, Young NL, Toulouse P. Keeping Kids Safe: Caregiver's Perspectives on the Determinants of Children's Physical Activity in Rural Indigenous Communities. Rural and Remote Health Journal March 20, 2019; 19(1) 4833 https://doi.org/10.22605/RRH4833
Young NL, Wabano MJ and the ACHWM Effectiveness Team (Ritchie SD, Jacko D, Enosse L, Anderson M, Trudeau T, and Elder Rita Corbiere). Beyond the Patient – Lessons from Community Engagement in Rural and Remote First Nations. CMAJ 2018 Nov 7;190(Suppl):S16-18.
McGregor L, Toulouse P, Maar M, Young NL. Caregiver's Perspectives on the Determinants of Dietary Decisions in Six First Nation Communities. International Journal of Indigenous Health, 2018; 13(1): 123-140. DOI: https://doi.org/10.18357/ijih.v13i1.30306.
Young NL, Wabano MJ, Jacko D, Barbic SP, Boydell K, Thavorn K, Roy-Charland A, Momoli F, Anderson M, Trudeau T, Mushquash C, Szatmari P, Denommee J, Williamson P and The Aboriginal Children’s Health Screening Study team. Community-Based Screening & Triage vs Standard Referral of Aboriginal Children: A Prospective Cohort Study Protocol. International Journal of Indigenous Health 2018; 13(1): 65-86. https://jps.library.utoronto.ca/index.php/ijih/article/view/30282
Marshall C, Harrison D, Young N, Forgeron P. Exploration of nurses' pediatric pain management experiences in rural hospitals: A qualitative descriptive study. Applied Nursing Research, 2018: 42:89-97. DOI: https://doi.org/10.1016/j.apnr.2018.06.009
Warfe G, Buchner-Daley L, Gibson T, Hilliard P, Usuba K, Abad A, Boma-Fischer L, Bouskill V, Floros G, Lillicrap D, Lowe Y, Lowe D, Palmer-Mitchel N, Rand M, Teitel J, Tuttle A, Watson A, White R, Young N, Blanchette V. The Jamaican Haemophilia Registry: Describing the burden of disease. Haemophilia 2018. https://doi.org/10.1111/hae.13517.
Chris AP, Young NL, Belanger K Greasley L. Results of an environmental scan to determine the level of uncorrected refractive error in First Nations elementary school children in Ontario. Canadian Journal of Optometry 2017; 79(1): 13-13.
Tang L, Xu W, Li CG, Hou F, Feng XQ, Wang H, Li XJ, Li WL, Liu JP, Sun LR, Wang SH, Jiao J, Fang Q, Luke KH, Poon MC, Blanchette V, Usuba K, Young NL, Wu R.Describing the Quality of Life of Boys with Haemohilia in China: Results of a Multi-Center Study using the CHO-KLAT. Haemophilia. 2018;24:113–119. https://doi.org/10.1111/hae.13349
Limenis E, Feldman B, Achonu C, Batthish M, Lang B, McLimont M, Ota S, Ramanan A, Scuccimarri R, Young NL, Schneider R. Proposed core set of items for measuring disease activity in systemic juvenile idiopathic arthritis. The Journal of Rheumatology.2017; 45(1):115-121 DOI: https://doi.org/10.3899/jrheum.161534.
Carniero J. Blanchette V, Ozelo M, Atunes SV, Villaca PR, Young NL, Castro D, Brandao LR, Carcao M, Abad A, Feldman B. Comparing the burden of illness of hemophilia between resource-constrained and unconstrained countries: the São Paulo – Toronto Hemophilia Study. Haemophilia 2017;23(5):682-688. DOI: 10.1111/hae.13230
Limperg P, Terwee CB, Young NL, Price VE, Gouw SC, Peters M, Grootenhuis MA, Blanchette V, Haverman L. Health related quality of life questionnaires in individuals with hemophilia: a systematic review of their measurement properties. Haemophilia. 2017; 23: E6-E7. DOI: 10.1111/hae.13197.
Young NL, Wabano MJ, Blight S, Baker-Anderson K, Beaudin R, McGregor LF, McGregor LE, Burke TA. Relevance of the Aboriginal Children's Health and Well-being Measure (ACHWM) Beyond Wikwemikong. Rural and Remote Health. 2017;17(2):394. URL: http://www.rrh.org.au/articles/showarticlenew.asp?ArticleID=3941.
Carcao M, Kearney S, Santagostino E, Oyesiku JOO, Young NL, Munier CS, Hoxer CS, Zhang C, Blanchette VS. Insight in health-related quality of life of young children with haemophilia B treated with a long-acting nonacog beta pegol recombinant Factor IX. Hemophilia 2017 . DOI: 10.1111/hae.13195
Wu R, Sun J, Xiao J, Liu Y, Xue F, Wang H, Tang L, Zhao Y, Li K, Yang R, Luke KH, Poon MC, Blanchette V, Young NL. A Prospective Study of Health-Related Quality of Life Of Boys With Severe Haemophilia A in China: Comparing On-Demand to Prophylaxis Treatment. Haemophilia. 2017; 23(3):430-436. DOI: 10.1111/hae.1319
Stephens L, Spalding K, Aslam H, Scott H, Ruddick S, Young NL, McKeever P. Inaccessible childhoods: evaluating accessibility in homes, schools and neighbourhoods with disabled children. Children's Geographies. 2017;15,(5);583–599. DOI: http://dx.doi.org/10.1080/14733285.2017.1295133
Young NL, Wabano MJ, Usuba K, Mishibinijima D, Jacko D, Burke T. Reliability of the Aboriginal Children’s Health and Well-Being Measure (ACHWM). SpringerPlus. 2016 Dec 7;5(1):2082(1-5). DOI: 10.1186/s40064-016-3776-y URL: http://rdcu.be/nCzf
Mizrahi T, St-Louis J, Young NL, Ménard F, Zourikian N, Dubé E,Rivard GE. Adherence to treatment regimen and bleeding rates in a prospective cohort of youth and young adults on low-dose daily prophylaxis for severe hemophilia A. BMC hematology. 2016 Nov 8;16(1):26(1-6). DOI: 10.1186/s12878-016-0067-3 URL: https://bmchematol.biomedcentral.com/articles/10.1186/s12878-016-0067
Young NL, Wabano MJ, Usuba K, Mishibinijima D, Jacko D, Burke T. Reliability of the Aboriginal Children’s Health and Well-Being Measure (ACHWM). SpringerPlus. 2016;5(1):2082. DOI 10.1186/s40064-016-3776-y. http://rdcu.be/nCzf
Young NL, Jacko D, Wabano MJ, Hawthorne L, Seabrook S, Wabanosse S, Usuba K. A Screening Mechanism to Recognize and Support Aboriginal Children At-Risk. Canadian Journal of Public Health 2016;107 (4-5).
Haverman L, Limperg PF, Young NL, Grootenhuis MA, Klaassen RJ. Paediatric Health Related Quality of Life: What is it and Why Should We Measure it? Submitted to: Archives of Disease in Childhood, Oct 6, 2016. DOI:10.1136/archdischild-2015-310068
Villaca P, Blanchette V, Carniero J, Ozelo M, Atunes S, Feldman B, Abad A, Usuba K, Young NL. Validity of the Portuguese CHO-KLAT in Brazil. Heamophilia 2016. DOI: 10.1111/hae.1303
Marsh TN, Young NL, Cote-Meek S, Najavits LM, Toulouse P. Impact of Indigenous Healing and Seeking Safety on Intergenerational Trauma and Substance Use in an Aboriginal Sample. Addiction Research and Therapy Journal 2016 ;7:284(1-10). DOI: 10.4172/2155-6105.1000284 URL: https://goo.gl/u8280L
St-Louis J, Urajnik DJ, Ménard F, Cloutier S, Klaassen RJ, Ritchie B, Rivard GE, Warner M, Blanchette V, Young NL. Generic and Disease-Specific Quality of Life Among Youth and Young Men with Hemophilia in Canada. BMC Hematology 2016: 16 (13) 1-9.
Marsh T, Cote-Meek S, Young NL, Najavits LM, Toulouse P. Indigenous Healing and Seeking Safety: A Blended Implementation Project for Intergenerational Trauma and Substance Use Disorders. The International Indigenous Policy Journal 2016.
McKeever P, Dunn J, Yantzi N, Aslam H, Doherty S, Ruddick S, Young N, Scott H. Developing an Ethnography-Based Accessibility Survey With and for Disabled Children. Journal of Ethnographic and Qualitative Research 2015;10(2).
Ritchie SD, Wabano MJ, Corbiere RG, Russell K, Restoule B, Young NL. Connecting to the Good Life through Outdoor Adventure Leadership Experience Designed for Aboriginal Youth. Journal of Adventure Education and Outdoor Learning 2015.
Young NL, Wabano MJ, Usuba K, Pangowish B, Trottier M, Jacko D, Burke TA, Corbiere R. Validity of the Aboriginal Children’s Health and Well-Being Measure: Aaniish Naa Gegii?. Health and Quality of Life Outcomes. 2015; 13(148): 1-7.
Young NL, Wabano MJ, Ritchie SD, Burke TA, Pangowish B, Corbiere R. Assessing Children’s Interpretations of the Aboriginal Children’s Health and Well-Being Measure (ACHWM). Health and Quality of Life Outcomes. 2015; 13(105): 1-7.
McCusker PJ, Burke TA, Holzhauer S, Fischer K, Altisent C, Grainger JD, Meunier S, Wakefield C, Blanchette VS, Young NL. International Cross Cultural Validation Study of the Canadian Hemophilia Outcomes – Kids Life Assessment Tool (CHO-KLAT). Haemophilia, 2015; 21(3): 351–357.
Wu RJ, Zhang J, Sun M, Zhou JS, Wu JS, Li N, Li X, Luke B, Poon MC, Blanchette V, Young NL. Validation of the Chinese Version of the Canadian Haemophilia Outcomes-Kids’ Life Assessment Tool (the CHO-KLAT). Haemophilia, November 2014; 20(6): 794-799.
Usuba K, Oddson B, Gauthier A, Young NL. Changes in Gross Motor Function and Health-Related Quality of Life in Adults with Cerebral Palsy: an 8-year follow-up study. Archives of Physical Medicine and Rehabilitation, November 2014; 95(11): 2071-2077.
Young NL, Anselmo LA, Burke TA, McCormick A, Mukherjee S. Youth and Young Adults with Spina Bifida: Their Utilization of Physician and Hospital Services. Archives of Physical Medicine and Rehabilitation, March 2014; 95(3): 466-471.
Ritchie SD, Wabano MJ, Enosse L, Russell K, Restoule B, Young NL. Promoting Resilience and Wellbeing Through an Outdoor Intervention Designed for Aboriginal Adolescents. Journal of Rural and Remote Health, March 2014; 14(1): 2523.
Stewart D, Law M, Young NL, Forhan M, Healy H, Burke-Gaffney J, Freeman M. Complexities During Transitions to Adulthood for Youth with Disabilities: Person-environment interactions. Disability and Rehabilitation, February 2014; 36(23): 1998-2004.
Ritchie SD, Wabano MJ, Beardy J, Curran J, Orkin A, VanderBurgh D, Young NL. Community-based Participatory Research with Indigenous Communities: The Proximity Paradox. Health and Place, November 2013; 24: 183-189.
Cassis FRMY, Carneiro JDA, Villaça PR, Santos VN, Sandoval EPN, Roy-Charland A, Burke TA, Blanchette VS, Brandão LR, Young NL. Importance of Literacy for Self-reported Health-Related Quality of Life: A Study of Boys with Haemophilia in São Paulo, Brazil. Haemophilia, November 2013; 19(6): 866-869.
Young NL, Wabano MJ, Burke TA, Ritchie SD, Mishibinijima D, Corbiere R. A Process for Creating the Aboriginal Children’s Health and Well-Being Measure (ACHWM). Canadian Journal of Public Health, April 2013; 104(2): e136-e141.
Young NL, Burke TA, Sheridan K, McCormick A, Mukherjee S. Health Outcomes among Youths and Adults with Spina Bifida. Journal of Pediatrics, May 2013; 162(5): 993-998 (e-published: November 19, 2012).